This site is a tribute to our beloved Mahasty, who is much loved and will always be remembered.

In her memory and in celebration of her life, we are raising funds for the PSP Association to support ground-breaking research on Progressive Supranuclear Palsy (PSP). PSP is a rare neurological condition without any cure, and it leads to severe difficulties with balance, movement, vision, speech and swallowing. Since it is rare, there is very little funding available to support research on this condition. The PSP Association funds research on PSP entirely by voluntary donations. Since I have closely dealt with this debilitating disease that my mom was diagnosed with, I know that any advance in research would be vital for people in a similar situation. Any amount that you can donate in memory of my mother, however small, will be important to improve the diagnosis, develop new treatments, and ultimately find a cure for PSP. 

Our beloved Mahasty was diagnosed with PSP in September 2016 by a neurologist in Amsterdam. Her condition was confirmed a few months later by two other neurologists at Rotterdam and UCLA. Her symptoms started much earlier than that though. By the end of 2014 she started having some problems with balance and remembering specific words when talking. These symptoms were still quite mild at that time. Gradually she started having difficulty turning in bed and had a hard time with getting up from a seated position. Unfortunately none of the doctors knew what was causing these symptoms and the scans and MRIs did not show anything unusual. In late 2015 she had a fall in the street which caused a subdural hematoma and it was followed by two surgeries to remove it. The surgeries went well and she could still live independently at that time. It was not until 2016 that her condition gradually worsened. Different doctors gave us multiple incorrect diagnoses. From the diagnosis of NPH to Parkinson's disease. Finally in 2016 we had a diagnosis which matched all her symptoms, and it was not good news: PSP. We had not heard about it, and neither had many doctors (even neurologists) that we spoke to later. 

Due to PSP, her life changed dramatically. Going from an independent, vibrant life, to being dependent on two caretakers for everything. She accepted her condition with grace and strength. She kept up her sense of humor even in the darkest of hours and the most difficult times. She stood firmly with strength, accepted, laughed, fought back, and flew away.

She was always full of life and love. She celebrated life, and used every occasion to gather family and friends to celebrate life with her. She was a true role model for the younger generation of women in our family.

She will be missed, but she goes on in our minds and hearts forever.

In her memory, please donate to the PSP Association to help fund research for this rare condition.

Once £2500 has been raised, the PSP Association will arrange for a tree to be planted in dedication to her. 

Oh threats of Hell and Hopes of Paradise!
One thing at least is certain - This Life flies;
One thing is certain and the rest is Lies -
The Flower that once has blown forever dies.

- Khayyam